| 46 | marlene west Sat Oct 13th,2007 12:25:52 PM |
| | lebers
rmwestie@msn.com
|
| 45 | JUDY MILES Tue Jul 17th,2007 06:14:19 AM |
| | LHON
smile.com@optusnet.com.au
MY FAMILY IS AFFECTED BY THIS HORRID DISEASE.
MY MOTHER WAS 51 WHEN SHE LOST HER SIGHT, MY SON 19 WHEN HE DEVELOPED HIS FIRST SIGN.
I DO KNOW THAT THE BOTH HADD HEAD KNOCKS{SEVERE}
WILL DO ANTHING TO HELP
JUDY MILES |
| 44 | Kelly A. Dowdy Simpson Sun Apr 22nd,2007 12:44:29 AM |
| | LCA
Emruleyes44@msn.com
I have 2 children with Lebers congenital amourosis.
They are 23 and 19. I am just trying to seek information. |
| 43 | KEV REGAN Tue Jan 2nd,2007 12:28:20 PM |
| | kp.regan@btinternet.com
My brother was recently diagnosed with LHON he is 39yr. I am looking for support groups. If you know of any, let me know please OR ANY ADVICE |
| 42 | Danny Griffith Sun Nov 5th,2006 09:47:36 PM |
| | LHON
dannygrffth@yahoo.com
I was recently diagnosed with LHON. I am looking for support groups. If you know of any, let me know please. |
| 41 | Marlee Matheson Sat Jul 29th,2006 10:12:29 AM |
| | 23 year old son with LHON
marleematheson@hotmail.com
Has there been anybody that has tried a low dose of naaltrexone (LDN) for Acute stage ( only one eye affected so far) of LHON. |
