| 48 | Angela Caravello Mon Mar 2nd,2009 03:14:16 PM |
| | Family with history of Leber's disease.
amcaravello@yahoo.com
I have recently had genetic testing done to determine if I do in fact carry the LHON gene. I received my test results today. I do in fact carry this gene. I am now overcome with concern as I have one son who is only 3 years old. My mother, her twin sister and three of my uncles were affected by this disease. The youngest male at age 12, the oldest male into his early 20's. My mother and aunt were both affected in their mid to late 20's. I am in search of any/ all support groups or any information on current research. I am open to questions or any information at all. Please feel free to reply or contact me via email at amcaravello@yahoo.com. Thank you. |
| 47 | jojo dorsey Fri Feb 13th,2009 12:33:09 PM |
| | lhon
wgw50@comcast.net
is there any treatment in the usa for this desease |
| 46 | marlene west Sat Oct 13th,2007 12:25:52 PM |
| | lebers
rmwestie@msn.com
|
| 45 | JUDY MILES Tue Jul 17th,2007 06:14:19 AM |
| | LHON
smile.com@optusnet.com.au
MY FAMILY IS AFFECTED BY THIS HORRID DISEASE.
MY MOTHER WAS 51 WHEN SHE LOST HER SIGHT, MY SON 19 WHEN HE DEVELOPED HIS FIRST SIGN.
I DO KNOW THAT THE BOTH HADD HEAD KNOCKS{SEVERE}
WILL DO ANTHING TO HELP
JUDY MILES |
| 44 | Kelly A. Dowdy Simpson Sun Apr 22nd,2007 12:44:29 AM |
| | LCA
Emruleyes44@msn.com
I have 2 children with Lebers congenital amourosis.
They are 23 and 19. I am just trying to seek information. |
| 43 | KEV REGAN Tue Jan 2nd,2007 12:28:20 PM |
| | kp.regan@btinternet.com
My brother was recently diagnosed with LHON he is 39yr. I am looking for support groups. If you know of any, let me know please OR ANY ADVICE |
