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Leber's Help Page

 Last Updated Sun July 15,2007 05:16:23 pm  

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	NEW Lebers (LHON) Message Board Forum
	- this forum for Lebers (LHON) is to be used by anyone     with the disorder  - you should register with the forum for more access but     its not necessary at this time (this might change in the     future if the board is abused)  - to understand more about Forums and Message Boards    click HERE to go to www.phpBB.com (these are the     developers of the forum  - I am the forum administrator so don't email phpBB.com    if you have any problems   - if you have any questions, problems or ideas I can be     reached by clicking HERE  - I hope this forum to be of some value please let me    know                    CLICK Here to  ENTER Lebers (LHON) Forum / Message Board
	Shadows & Light (Story) a Journey into Blindness The story concerns Howard Dupuis, a City Editor at the SpringfieldUnion-News who -- over a six week period -- succumed to near-total blindness. He suffers from a rare hereditary disease called Leber's Hereditary Optic Neuropathy. (Click Here for Full Story)
	When The Lights Go Out (Story)

• Lebers disease was first described by a German eye specialist in the 1870's
  

• LHON is a genetic disorder passed on by females to both male and female offspring but those who have LHON mainly are male.  There are a  very small percentage of  females that are known to also have this disorder.
  

• renders an individual legally blind.
  

• symptoms start with a loss of central vision in one eye first then progresses to the other eye over the course of days to months later.
  

• there are no noticeable features that would let the average person determine that a person was suffering from LHON, in fact in familiar surroundings one who has Lebers shows no signs of the disorder and functions for the most part like an average sighted person.
  

• no known treatments are available at this time.
  

• genetic research is on going.
  

• sight is restricted to extreme magnification of text or  objects with any type of detail.
  

• the color blind condition is when there is a loss of all colors, or when the colors are not being viewed correctly.
  

• what triggers the genetic defect to become active is not totally known but it is thought that alcohol, smoking and stress play major rolls in triggering LHON.
  
  

© Copyright 1997 J. Hall

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